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Welcome Home, Robert

No more rationing how many nights Robert can sleep over; No more arranging doctor appointments not only around my schedule, work and when Robert is sleeping over but New Home schedule; Robert’s first...

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Who’da Thunkit?

(Editor’s Note: Today we welcome @alyceev to our blogging family.) Hi, my name is Lycee, and though I’ve been part of the caregiving community for years, I just found this out for myself today. I have...

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When Things Are Too Much

“I was wondering if this would be too much for you.” Denise recently asked me this but she wasn’t referring to caring for Robert.  She knows Richard and I can care for Robert and that bringing him into...

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Sometimes It Just Is

I hate to admit, but if I’m honest with myself, sometimes I feel trapped in my caregiver role. Like if I weren’t here, my sister and brother would have no one. And sometimes I do feel like I wish I...

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Discombobulated

I love the word “discombobulated.”  (If I remember correctly, someone recently posted here about the same topic – it must be going around!) Just hearing the word conveys its meaning: confusion.  The...

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A New Day :-)

Today is a new day, and I am so thankful for the possibilities that exist! Some days I struggle with the caregiver role, even though I couldn’t live with myself if I didn’t “do what I can.” Today...

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Kindness – Every Little Bit Helps

It is sometimes difficult to believe in the goodness of the human race when there is such evil, violence and despicable acts splashed across most news sites. It can be difficult to see the goodness...

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Co-Caregiving: Developing into a Team

(Reprinted from Trish’s personal website/blog www.robertssister.com) My husband (@kreisler) and I work pretty well as a team. Co-caregivers Trish & Richard on vacation We first blended our families...

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Co-Caregiving: Tips for Success

(Reprinted from Trish’s website www.robertssister.com) Our caregiving situation is not unusual. According to a 2009 study conducted by the National Alliance for Caregiving in collaboration with AARP,...

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Co-Caregiving: Recognizing the Pitfalls and Avoiding the Sinkholes

(This is reprinted from @Trish’s personal website www.robertssister.com) I have to break it to you: Co-Caregiving is not all roses, sunshine and success. Yep, there are bad days.  On my good days, I...

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Identity Crisis

I’m in a pretty funky head space right now so be prepared.  I’m warning you now to bail – go read something happy; save yourself!  I’m in such a bad space, there’s going to be a bit of whining, moping...

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We’re “Going” to the Movies!

I love movies! When I was younger I really wanted to be an actress and even had opportunities to be an extra in movies being filmed in our city.  It was such fun watching the process, being involved in...

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At the Movies with Robert’s Sister: UP

It’s been tough deciding on the first movie to review! Since my reviews are geared toward the caregiver my criteria for the movies are: The movie has to be easily accessible for home viewing; The movie...

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With Just One Click…

(I have to apologize for posting without having commented recently. I promise to catch up but know that I read all the blogs and even though I don’t always comment, my heart is with each of you.)...

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On Pneumonia Watch

I am not an alarmist. I think I’m pretty practical and level-headed. Even a realist when warranted. With Robert, I do have to be on alert with his health since he can go from having a slight cold to...

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A Caregiving Story

We have lived in our house for 16 years and have raised three kids and countless animals in it. It is a modest-size home but seemed gigantic to us when we first moved here because we were coming from...

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Richard is in the ICU (what?! who?!)

Richard is in the ICU. Not Robert. Richard. I’m as shocked as everyone. As many of you know, Richard has severe back pain and it is managed with an intrathecal pain pump filled with Fentanyl. This is...

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Choosing Pain or Taking a Risk

Richard survived the unintended Fentanyl overdose and was released on Friday – our 16th anniversary and Robert’s birthday.  It certainly was a day to celebrate! What a difference a year can make. A...

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Robert’s Turn in the Hospital

October cannot come soon enough. Richard (@kreisler), was in the hospital for four days after Labor Day (most spent in the ICU), thanks to an inadvertent drug overdose by his doctor. Robert was pretty...

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Another Day, Another Visit to the ER

I am not making this up. Soap opera writers are starting to call me for story ideas. I expect my evil, identical twin to show up any minute now. (Okay, that part, I’m making up.) Richard (@kreisler)...

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